Volume 19, Issue 4 (Paramedical Sciences and Military Health (winter 2024) 2024)
Paramedical Sciences and Military Health 2024, 19(4): 0-0 |
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Norouzi Aval R, Rafatpanah H, Sarbaz M, Vahidi Z, Boostani R, Zemorshidi F, et al . Identifying the Information Needs and Desires of Patients with HTLV-1 Regarding the Patient Portal. Paramedical Sciences and Military Health 2024; 19 (4)
URL: http://jps.ajaums.ac.ir/article-1-460-en.html
URL: http://jps.ajaums.ac.ir/article-1-460-en.html
Reyhaneh Norouzi Aval1 
, Houshang Rafatpanah2 , Masoumeh Sarbaz1 , Zohreh Vahidi2 , Reza Boostani3 , Fariba Zemorshidi3 , Seyyedeh fatemeh Mousavi baigi1 , Khalil Kimiafar4
, Houshang Rafatpanah2 , Masoumeh Sarbaz1 , Zohreh Vahidi2 , Reza Boostani3 , Fariba Zemorshidi3 , Seyyedeh fatemeh Mousavi baigi1 , Khalil Kimiafar4
1- Department of Health Information Technology, Faculty of Paramedical and Rehabilitation Sciences, Mashhad University of Medical Sciences, Mashhad, Iran
2- Immunology Research Center, Department of Inflammation and Inflammatory Diseases, Mashhad University of Medical Sciences, Mashhad, Iran
3- Department of Neurology, Ghaem Hospital, Mashhad University of Medical Sciences, Mashhad, Iran
4- Department of Health Information Technology, Faculty of Paramedical and Rehabilitation Sciences, Mashhad University of Medical Sciences, Mashhad, Iran ,kimiafarkh@mums.ac.ir
2- Immunology Research Center, Department of Inflammation and Inflammatory Diseases, Mashhad University of Medical Sciences, Mashhad, Iran
3- Department of Neurology, Ghaem Hospital, Mashhad University of Medical Sciences, Mashhad, Iran
4- Department of Health Information Technology, Faculty of Paramedical and Rehabilitation Sciences, Mashhad University of Medical Sciences, Mashhad, Iran ,
Abstract: (142 Views)
Introduction: In the field of healthcare, access to high-quality information is essential for enhancing patient engagement in the care process. This study aimed to investigate the information needs and preferences of patients with HTLV-1 regarding patient portals, with the goal of informing improvements in digital health services.
Materials and Methods: This descriptive cross-sectional study was conducted in Mashhad University of Medical Sciences from February to May 2025. The study population included all patients who visited the HTLV-1 clinic during the study period. 60 participants were selected using convenience sampling technique. Data were collected using a standardized, pre-designed questionnaire whose face validity was confirmed by five experts in health information management, medical informatics, and biostatistics. Test-retest reliability was assessed, yielding a Cronbach’s alpha of 0.78. The questionnaire consisted of two sections: demographic data and eight main domains with a total of 44 items: (1) access to various types of information, (2) timing of access, (3) access to functionalities, (4) communication, (5) safety, (6) partial access for others, (7) considerations for portal use, and (8) concerns related to portal use. Data analysis was performed using SPSS software version 24, applying descriptive statistics and independent t-tests to explore associations between questionnaire items and demographic variables (significance level: p ≤ 0.05).
Results: Among 60 respondents, 28 (46.6%) were male and 32 (53.3%) were female with an average age of approximately 45 years. The most desired portal features included appointment reminders (93.3%), online appointment scheduling (90%), prescription requests (83.3%), and access to drug information (73.3%). Conversely, the most opposed features were completing disease-related questionnaires (40%), accessing a medical glossary (46.6%), and recording personal notes in the portal (50%). There was not any significant association between demographic characteristics and questionnaire domains.
Conclusion: Active patient participation is a key factor in improving healthcare quality and patient portals can play a vital role in supporting this engagement. Understanding patients’ attitudes, needs, and experiences is essential for designing more effective and user-friendly digital health tools.
Materials and Methods: This descriptive cross-sectional study was conducted in Mashhad University of Medical Sciences from February to May 2025. The study population included all patients who visited the HTLV-1 clinic during the study period. 60 participants were selected using convenience sampling technique. Data were collected using a standardized, pre-designed questionnaire whose face validity was confirmed by five experts in health information management, medical informatics, and biostatistics. Test-retest reliability was assessed, yielding a Cronbach’s alpha of 0.78. The questionnaire consisted of two sections: demographic data and eight main domains with a total of 44 items: (1) access to various types of information, (2) timing of access, (3) access to functionalities, (4) communication, (5) safety, (6) partial access for others, (7) considerations for portal use, and (8) concerns related to portal use. Data analysis was performed using SPSS software version 24, applying descriptive statistics and independent t-tests to explore associations between questionnaire items and demographic variables (significance level: p ≤ 0.05).
Results: Among 60 respondents, 28 (46.6%) were male and 32 (53.3%) were female with an average age of approximately 45 years. The most desired portal features included appointment reminders (93.3%), online appointment scheduling (90%), prescription requests (83.3%), and access to drug information (73.3%). Conversely, the most opposed features were completing disease-related questionnaires (40%), accessing a medical glossary (46.6%), and recording personal notes in the portal (50%). There was not any significant association between demographic characteristics and questionnaire domains.
Conclusion: Active patient participation is a key factor in improving healthcare quality and patient portals can play a vital role in supporting this engagement. Understanding patients’ attitudes, needs, and experiences is essential for designing more effective and user-friendly digital health tools.
Type of Study: Research |
Subject:
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Received: 2025/03/23 | Accepted: 2025/05/26 | Published: 2024/12/30
Received: 2025/03/23 | Accepted: 2025/05/26 | Published: 2024/12/30
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